Zolgensma medicine worth Rs 16 crore given to Ayansh of Hyderabad, 65 thousand people donated

Hyderabad: About 65,000 people gave donation for treatment due to a rare and deadly disease related to 'Jean' to a child of Telangana (Telangana). In a private hospital of Hyderabad, 3-year-old child named Oriya Gupta was given on Wednesday, the world's most expensive drug 'Jolgensma' (Zolgensma) was given to the US from the US.

When the child was one year, he found out the disease named 'Spinal Muscular Atrophy). Earth's father Yogesh Gupta works here in a private company. He said, 'This is a very rare disease that weaknesses in the muscles. With this, the child can not shake his hands, can not sit, can not stand and can not run too. There is a problem in eating food. '

Gupta said that this disease is also dead and the doctors had said that their child will not survive for more than three to four years, so he needs treatment on time. It was impossible to collect 16 crore rupees for a dose of medicine, but later the child's parents decided to appeal to social media.

Film celebrities donated

In February this year, he campaigned to collect a donation to save his child's life, in which his friends and family members also helped. For treatment, he raised enough funds in 3 months. Many celebrities of Virat Kohli, Anushka Sharma, Anil Kapoor, Ajay Devgan and TV industry donated further.

65,000 people donated

Gupta said, "About 65,000 people donated. It was possible on May 22. ' A friend of the family contacted a MP who raised the issue of the medication in Parliament, after which the Central Government has forgiven a tax of Rs. 6 crore. After giving medicine to the child, Gupta expressed hope that in the coming time there will be further improvement. He said that the objects have been discharged from the hospital and the treatment will continue further. The child's father has thanked all 65,000 donors.