Rajasthan / Innocent Noor Fatima, fighting a rare disease, lost the battle of life, could not get an injection of 16 crores

Bikaner. In Tuesday, 7-month innocent girl Noor Fatima (Noor Fatima) suffered from Rare Spinal Mascular Atrophy (Spinal Muscular Atrophy) in the city. To save the daughter, the amount of Rs 40 lakh was collected in the collaboration. People who cooperate for Noor's treatment have a big shock from his death (DEMISE). To save this innocent, an injection of a cost of Rs 16 crore was to be imposed. It was to be imported from the United States (USA).

Noor Fatima, who came from the general family, was not possible to raise such a large amount for Jishan. In such a situation, their family members and friends had started raising the rupees. Under this 40 lakh rupees was collected, but this amount was very low while considering the need for Rs. 16 crores. In such a way, his health deteriorated due to not getting the necessary injection on time. On Tuesday, doctors declared him dead in the hospital.

What is this disease

Spinal Mascular Atrofi Type-1 is a rare disease. Children's muscles suffering from this disease are weak. There is a problem in breathfeeding and breathing. The child gets completely idle. There is no treatment available in India yet. Cure abroad is so expensive that everyone can not afford. Therefore, in one and a half years, children suffering from this disease.

Will return the sum of the sum

Noor's uncle Aked Jamil said that about 30 lakh rupees has come to the father of innocent father and uncle. While around Rs 10 lakhs are with social institutions. These institutions have been told that keep this amount back. At the same time, those who have deposited the amount directly to the account will also be returned. If a person does not take back money, then this amount will be sent to children suffering from such illness in collaboration with the district administration so that their lives can survive.